Supporting families who have suffered baby loss

For Bereaved Parents

The death of a child is a family’s worst nightmare, but sadly it is a reality for a number of us.

When you are faced with the shocking death of a baby or child, life will feel like its standing still and moving fast all at the same time, you will feel like you cannot control anything and decision making will become very difficult. You may feel hurt, helpless and vulnerable,

Shock may overcome you and you may feel numb, anxious and full of disbelief, when the body experiences trauma after the death of a baby or especially if you have given birth to the baby your body goes into shock, the nervous system is telling your brain that the world is not safe and it try’s to protect you from the overwhelming reality of the death. You will need to slowly re-establish your sense of safe and security and if that means avoiding certain people of places then that is OK,

You may want to close yourself off to protect your heart and soul from any more pain, you may be guarded and closed off from people you love or you may feel reliant of specific people who make you feel safe to help you through each and every day,

It important to take your time, don’t rush into decisions, call upon friends and acquaintances that have your best interests at heart to help with the big decision in the early days,

At the time you may think you don’t want to make memories and keepsakes of your little one but they will be all you have to look back on it later days, take lots of photos, of everyone and everything and of every inch of your baby, if you’re not up to it assign the task to someone you trust to do it for you, use all of the things that are available to you, castings, photos, keepsakes, you will never regret having them but you will regret not having them forever,

Make sure you know that you can have your baby with you for as long or as little as you want, baby can go home with you or you can stay with him/her at all times, at the hospital or even at home, you do not have to rush or say goodbye until you’re not ready,

Feel encouraged to pick them up, if you want to hold them hold them, if you don’t, hold them anyway, you have a small window of opportunity to take every inch of them in and you will regret not doing it,

Get a family photo no matter how silly you think it is, you will treasure it forever,

Name your baby, if you have named your baby, use the babies name when you are speak about him/her, it will be comforting when friends and family use the name around you,

Your body will go into survival mode so it will only focus the imperative tasks, you may become foggy, forgetful and spacey and feel a bit zoned out,

Your emotions may be all over the place, one minute you will be OK, next you may be full of rage and anger and within a few minutes you may be crying uncontrollable, all of these feelings are normal, let them come,

You will want to blame someone or yourself, this is very common and normal, we don’t want our babies death to be for no reason so we will try and find any reasoning or answers we can.

You may feel extremely depressed, you may believe that life isn’t important anymore, that there is no future and no point in any of it.

You may no longer see the point in the small stuff like cleaning or showering or eating but it’s important to look after yourself as much as you can, get other people to help with the task that seem too much for you.

You may struggle to sleep or you may be extremely tired even after sleep, grief is exhausting so ensure you rest when you can. Seek help if you are having trouble sleeping, lack of sleep on top of the exhaustion of grief is very dangerous.

You may feel anxious, you may suffer panic attacks over simple triggers and the depths of your panic and despair may feel overpowering like you will never feel joy again, know that in time you will feel joy again and that these emotions are an important part of the journey.

Anxiety can be triggered by painful experiences, objects, places, statements and or people, allow yourself to express these emotions when triggered, avoid situations or people/places whenever you feel you need to, you are the only one who knows what is best for you.

Tears will come when you least expect them or you may feel like you can’t cry.

Tears are the bodies’ way of naturally cleansing out emotions and feelings that are overwhelming, encourage your friends and family to outwardly express these emotions in a safe place.

You will be very overprotective of any living children or pets you have for fear of losing something else you love.

You may not be able to concentrate on fulfilling the needs or others or you may try and busy yourself by keeping everyone else happy, be careful not to overdo it and forget about your own needs, you are the most important.

You will feel extremely alone even in a crowded room.

You will go around and around the grief cycle many times in one day, shock, anger, depression, blame and sadness and back again.

Times and dates will have special meaning to you, so focus on what you need during these days, don’t do anything you don’t want to do, respect how you are feeling at the time and understand that it may change many times throughout the day.

Its OK to smile, don’t feel guilty about feeling joy.

The same goes for feeling sad, no feeling is the wrong feeling.

You will think you need to get better and go back to normal, understand that you will never be back to the way you were, you will spend a lifetime integrating this loss into your being and learn to grow and find a new normal, don’t push yourself to be over it or ‘better’ the love for your child is endless and a piece of you will be with them forever.

‘Why’ these questions may surface uncontrollably and feel consuming at times, you may feel like you can’t move forward until you find the reason and answer for this death happening, ultimately you may never find an answer, a baby’s death does not make sense and it never will.

Find a keepsake(s) that you can relate to your baby, wear it as much or as little as you want, it can be your security and connection to your little one when you are away from home or feeling particularly lonely.

Create a memory corner, a place where you can go to be with your little one, where you can keep all of the trinkets and things that remind you of your baby, don’t rush into chucking any items away that you brought for your baby, keep them in a box until you are in a place where you can go through them and know that you can keep them forever if you want.

Don’t let people push or rush you into things, if you are uncomfortable it’s OK to say no or take someone with you that you trust to speak for you or help make decisions with you, you will be foggy and cloudy for weeks and months afterwards.

Everyone expresses grief differently, try and avoid telling others how they should feel just reassure them that they are safe to feel whatever feelings they want and encourage them to talk about their feelings with someone the trust.

Mothers may find grief more disabling and longer lasting because they were physically connected to the baby and spirit.

Often it will feel like you are taking one step forward and two steps back, be compassionate with yourself this isn’t an easy or straight forward journey.

 

Remember that the only way to get to the other side is through, there is not short cut through grief, there are tools and support available that can help you but you cannot just be put back together and fixed.

Be suspicious if you have a particularly good day and think you are ‘doing well’ these feelings can mean you are avoiding the grief and the pain and it could come out of nowhere much stronger if you try and pack it away.

Don’t shut yourself away forever, its ok to want to be alone or just with your immediate family for a while, you will feel like you want to stay in your own safe bubble forever and that’s because you feel safe and secure in that place but it’s important to reach out and allow people to come and support you when you are up for it, you need to have people you can unload your grief to, people who won’t try and fix but just listen and be with you in your grief, you need to establish your tribe.

There is no right or wrong way to deal with grief and loss and everyone is different, the one thing that is the same is it can’t be done alone, you need support through your grief and you need compassion only then can you discover your new normal and learn to live with these feelings by being patient and tolerable with yourself, a piece of your heart is now in heaven and you need to figure out how to keep living without that very special part of you.

What Family and Friends Can do

Any mother who has been faced with the traumatic reality of having a baby die or having to give birth to a dead baby is one of thee most resilient woman you will ever meet, she is far stronger than any other, your worst nightmare is her reality and she is surviving, but she cannot do it alone.

Don’t be a stranger, death is horrible, it’s sad and its awkward but you don’t have to live with it every second of every day, you get to choose when to  venture into the uncomfortable realm of baby loss, you can decide how long you want to sit in this bubble of grief with us for, you can get up and leave anytime, you can turn and walk away and never think about it again but we are trapped, it’s our life now, the love we had for our babies is everlasting and we will never be able to forget their existence in our family and our life, we are living this reality every minute of every day and we need you!

 

Don’t shy away from us

Sit with us

Say nothing, words aren’t always needed,

Cry with us, or just let us cry

Lots of things will make us cry and that’s ok, it doesn’t mean we don’t want you to be there or say them

 

Say our babies names, we love to hear them out loud, they are still our children and just like any mother we love to talk about our children, they are a part of us,

Don’t think that talking about our babies will resurface our grief, you are not reminding us about what we’ve lost, we will never forget, we think about it every single day, but hearing you think about them means the world to us and reminds us that they are not forgotten by others.

Check in regularly, keep checking in, weeks, months, years later, this loss isn’t going anywhere for us, we will carry it forever,

We will be very protective of any of our surviving children so please be mindful and supportive of this, if you offer to take them, ensure you keep regular contact and update them on their child, be extra careful with them any mishaps involving our children whether minor or major will set us into an emotional whirl wind.

Every time you think of them, message them, your message could be the message that helps get them out of bed that day, the message that helps get them into the shower, the message that helps encourage them to eat, it could be the message that helps bring a smile to their face, it could be the message that stops them from taking their own life, your few words of kindness, that 30 seconds out of your day could save them,

Keep messaging even if we don’t reply, we appreciate every single thought

Keep inviting us even if we never show up, we want to be there but most days it’s just too much for us

We will avoid interactions, if you want to see them and they keep putting you off, pop something in the mailbox or at the front door instead, the comfort of knowing you are trying really hard will make it easier for us to be able to see you.

Your kind gestures will always be remembered

Negative gestures will also be remembered, we know if you avoid our isle at the supermarket or pretend you didn’t see us down the street or say you are going to call in and never do, it’s like adding fuel to someone who’s already on fire,

Yes it will be awkward sometimes, just sit with it, let it be awkward, there is nothing pleasant about baby loss

Choose your words carefully, we are very sensitive and easily upset, think before you speak, try putting yourself in our shoes

Leave baking or a dish at the door even months later, the simple gesture will make our day or even our week

Bring useful items instead of flowers like toilet paper, coffee, milk or tea,

Flowers are beautiful and lovely and make the house feel and smell amazing but flowers eventually die and then we are faced with the sad task of disposing of them and the emptiness that is left in the house afterwards is very depressing, bring a beautiful frame, a house plant, a momentous, a book, or donate to a baby loss charity,

Don’t ask what you can do to help, just do! Come in, turn the jug on, do the dishes, take out the rubbish, mow the lawns, clean the toilet, or vacuum,  we won’t ask for help,

Don’t say, ‘you know where I am if you need me’, it’s an empty promise, we are to fragile, we won’t reach out to you, just do,

If you see things that remind you of our babies send a picture to us, or buy it and pop it in the mail, we love to know when you are thinking about us and our babies and we will remember every little treasure that is given to us,

Come over and bring a game, or a movie, we are most likely not going to feel like going out for a while so bring the wine and chocolates to us, don’t exclude us,

We are going to be people you want to keep around, we are the ones who know what it’s like to live and survive the unsurvivable, we know how raw and hard the pain of grief and loss is, we know how important compassion is and we can empathise and understand. You are going to want to have us on your side if the tables are ever turned and you are faced by grief because we will be the support that we never had.

Helping Make Memories

Heartfelt – www.heartfelt.org.au

Connecting you to photographers who volunteer their time to create special memories for stillbirths, premature births, or have children with serious and terminal illnesses

MacDonald and Western funeral services – www.mwfunerals.co.nz

Integrity, Compassion, Kindness – Our promise to you

Fraser and Sons funeral services – www.frasersfunerals.co.nz

Excellent caring service to help create a special send off for your loved one

K J Designs –  www.kjdesigns.net.nz

Special baby loss jewellery personalised for you of your little one

Keepsake Couture – www.facebook.com/keepsakecouture

Jewellery that tells your story

Glover Memorials – www.glovermemorials.co.nz

Provide beautiful plaques for families of stillborn and newborn babies. These are free for anyone in NZ.  email info@glovermemorials.co.nz, child’s name and date, and include you name and address so that they can post it to you.

The Onsie Bear NZ – www.facebook.com/theonesiebearnz

We make specially crafted Keepsake Onesie Friends from your most cherished clothing.

ICE – www.facebook.com/icekeepsakejewellery

Professionally designed, lovingly crafted one of a kind Keepsake jewellery

A star is born –  www.facebook.com/astarisbornotago

Modern and timeless keepsakes for bereaved families of babies

Heart of Life – www.placenta.co.nz

Encapsulation Specialists. Specialising in Placenta encapsulation, Placenta art prints and cord keepsake

The Creative Minimalist – www.facebook.com/wildarrowlabel

Send in a pic of your angel and a pic of your family or a sibling/s, let Lara know a bit about your family, special symbols/toys etc & Lara will turn it into a beautiful print

Heartfelt
K J Designs
The Onsie Bear NZ
ICE
Heart of Life

Information and Resources

Wheturangitia – wheturangitia.services.govt.nz

Government run website with information for family and whanau who have experienced the death of a baby or child

Skylight – skylight.org.nz

Skylight is a non-profit trust that helps children, young people, their family/whanau and friends navigate through times of trauma, loss and grief.

You can request support packs. Phone: 0800 299 100.

Sands NZ –www.sands.org.nz

Sands NZ is a nationwide network of support groups for parents and families who have experienced the death of a baby at any gestation or age. Sands provides support locally and offers training and education for professionals and families.

Babyloss NZ – www.babyloss.co.nz

Help baby loss families make memories with their loved ones, they help create keepsakes castings, hold coffee mornings, run baby loss awareness events, provide training and education for professionals.

A Star is Born – www.facebook.com/astarisbornotago

A Dunedin group providing memory making for bereaved families. The service provides hand and foot casting, photography, products and keepsakes at no cost to families, and is a voluntary organisation.

Heartfelt – www.heartfelt.org.au

Heartfelt is a volunteer organisation of professional photographers from across NZ and Australia dedicated to giving the gift of photographic memories to families that have experienced stillbirth, premature births, or have children with serious or terminal illnesses. All services are provided free of charge.

Loss and Grief Centre –  www.lossandgriefcentre.com

Is a support centre based in Invercargill where you can go and talk with someone, find resources, books, a quiet place to sit and think or let your emotions out, they offer group meetings, individual counselling and other resources to help deal with loss and grief

Angel Whispers Baby Loss support program –  www.angelwhispers.com

Angel whispers provides support and programs for parents who have lost a baby.

Infants Remembered in Silence, Inc (IRIS) – www.irisremembers.com

A site for bereaved parents that offers support and comfort

S.O.B.B.S Stories of Babies Born Still – Stories Of Babies Born Still – SOBBS

A group dedicated to supporting and educating families grieving a stillbirth

SIDS support NZ – https://www.facebook.com/sidssupport/

A support group for Sudden Infant Death Syndrome

Bellyful NZ – https://www.facebook.com/BellyfulNZ/

will help out any family who has lost a baby with a free home cooked meal

Ronald McDonald Family Retreat – www.rmhc.org.nz/stay-with-us/family-retreats

Will provide a week of free holiday accommodation to families who have suffered the loss of a child.

Help Lines

Need to talk? Free call or text 1737 any time for support from a trained counsellor.

Lifeline – 0800 543 354 (0800 LIFELINE) for counselling and support.

Skylight – 0800 299 100 for support through trauma, loss and grief; 9am-5pm weekdays.

Depression Helpline – 0800 111 757 to talk to a trained counsellor about how you are feeling or to ask any questions.

Healthline – 0800 611 116 for advice from trained registered nurses.

Samaritans – 0800 726 666.

Youthline – 0800 376 633, free text 234 or email talk@youthline.co.nz. For young people, and their parents, whānau and friends.

What’s Up – 0800 942 8787 – for 5–18-year-olds; Mon to Fri midday–11pm and weekends 3pm–11pm.

Kidsline – 0800 54 37 54 (0800 KIDSLINE) – for young people up to 18 years of age. Open 24/7.

OUTLine NZ – 0800 688 5463 (0800 OUTLINE) – provides confidential support for sexuality or gender identity issues.

SPARX – an online self-help tool that teaches young people the key skills needed to help combat depression and anxiety.

The Journal  –  NZ based self-help programme designed to teach you skills that can help get through mild to moderate depression more effectively.

Big White Wall – Free for Auckland DHB residents. A UK-based professionally facilitated, peer support community of people who are experiencing common mental health problems.